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Posts Tagged ‘radiation’

The room is sterile. You are guided to a gurney and instructed to lay down on your back, hands over your head. There are pegs there for you to hold onto, but not because this will be painful: it is only to keep you from fidgeting. Look to the right and keep your head turned, you can see countless cupboards on the wall. A blue light comes on as the interns adjust your body to line up with the tattoos. Above, there is a skylight, except you know it is not real: the buds on the trees are out of season, the clouds don’t move, and birds don’t flit around. Also, you are in deep space and there is no sky.

The interns leave and a machine begins to whirl around you: a large disk with a square screen looms over you, then a rectangle with a screen, and last, a dull gray arm of the AI machine. It is working on you now. Healing your wounds from the inter-galactic war; healing the wounds from the inside-out so there will be no scar. OR it is working on the wiring in your body: you are an Android and have malfunctioned during the night. The latter is most likely: why else would they need your tattoos?

The machine reverses and you notice your skin looks like blue scales under the light. Perhaps it has turned blue, with scales, and you have not been warned. This repeats, slowly. Remember to breathe normally.

Then it is over. Ten minutes in, not long enough to create a story line as to why you are here in this science fiction tale. The techs return on silent feet and help you sit back up. The drive to get there takes longer than the actual radiation treatment.

Radiation is painless, for the most part. Today, I noticed a small spot of burn on my left breast where the radiation has been concentrated. It will get worse before it gets better, but it is tiny, like the cancer we are committed to destroying (we: all the staff at oncology and myself). The radiation has been concentrated on the spot where the cancer was. The only other treatment is using a prescribed lotion to keep the skin supple and healing.

I understand now why my friend, Diane, mentioned the “special” cream her other friend had to use. It’s not particularly “special” but there are a limited number of over-the-counter choices you are given to use. Unscented and manufactured without certain ingredients: a list is handed out before radiation, and they encourage you to apply it two to three times daily.

The scenario(s) in my first three paragraphs are fictionalized, of course. You are not in deep space, and you already knew it was a fake skylight: the same mural is in many exam rooms in hospitals. The interns are trained technicians. You do appear to have blue mottled skin, but that is the lighting from the machine. It’s not AI, but a complicated piece of hulking machinery that can shoot radiation precisely at a small spot inside your body, cooking and killing any stray cancer cells that may have been left behind in surgery. In my case, it is unlikely anything was left behind, but I have opted for the radiation to lower my chances of a recurrence to 4% over an 8-year period.

Today is my fifth and final round of radiation. I hop off the gurney (slight exaggeration there: I lower my aging body off. I say good-bye to the techs and exit the science fiction room. On my way past the nurse’s station to the changing rooms, I am presented with a Certificate of Completion. This is perhaps the most humorous part of this: a Gold Star for completing what I hope is my final round with breast (or any) cancer.

If you followed the story this far, congrats. And get the damn smoosh-smoosh-squash-squash done. I hate them, too.  

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I wish my son was here for me to tell. He would get a kick out of my first tattoo even though it is really not impressive. I have four tiny dots (about the size of a . ) on my torso tattooed with India ink. They are there so when I go in for radiation treatment, the radiologist will know where to point the lasers.

Backing up. I do have to have five days of radiation even though I am technically “cured” of breast cancer. The radiation is to ensure that no stray cancer cells were left behind (“leave no cell behind!”) and reduce my chances of ever having a tumor again. I’m cool with that. I am thrilled that I won’t have to endure chemotherapy. Radiation is just a road bump.

Last week, I met with the radiology oncologist who explained everything to me and gave me my options (I had three). Given the small size of the cancer, I chose the least invasive radiation plan which is streaming the radiation only on the site where the cancer was. No whole breast radiation, and not three weeks of it. I consented to the tattoos.

Today, I went in for a “sim” test on the CT Scan (Sim=simulation). They need to figure out the best position for the cancer patient to be in to maximize the radiation and to protect the heart and lungs. Radiation is good for you, but it is also very bad for you. Fortunately, my cancer was on the left side and that already helps protect the heart. I imagined this process would take some time as the tech figured out the best position for me to lie in and I also expected that position to be a bit uncomfortable. It was neither.

The first position worked, and it was not an uncomfortable one. I may get a bit of a neck cramp at the end of the first radiation treatment. I think the process took ten minutes, including the placement of the tattoos. Those dots will never be as fancy as my son’s tattoos or those of my beloved daughter-in-love, but at least I can brag that I have them. Can’t show you them (probably can’t even find them), but… I have them.

This short process was followed up by a consult with one of the radiology nurses who schooled me in how this is all going to work: side effects (minimal), checking in, consult with the radiology oncologist part way through, skin care, where to go, and so on.

It got dicey then. I had to fill out this form dealing with my emotions and mental outlook (I swear it is really good!) and under one heading was the question: “Are you dealing with the loss of a loved one?”

UM. YES. And then I had to tell my story to an incredibly empathetic radiology nurse who kept asking sympathetic questions and crying. To say it ripped my heart to shreds is to put it very mildly. I kept trying to tell her that going through cancer was nothing… but hitting that wall of loss still echoes in my heart. She hugged me when I left the office, but I sat in the car afterward and tried to collect myself. I came home and just sat in the garden, trying not to feel anything.

I really don’t want anyone’s sympathy. But- BOOM! – a stranger asks and then loses it over the tragedy of MY life. I don’t want to minimize my hurt by saying, “Others have it much harder” BUT … my life isn’t tragic. There have been tragedies and I may never fully recover from them. I will say my son’s name every day (and my sister’s, and my mother’s, and my father’s, but especially my son’s name). I am not who I was 2.5 years ago. The world shifted.

Even so, I wanted to write about my cancer journey with humor and funny anecdotes. It isn’t the end of the world. Even if it was a more severe cancer, it wouldn’t be the end of the world for me. This is just an obstacle in the road.

After all this is over, maybe I will get a real tattoo. Something that speaks of joy and living life to the fullest in honor of my son.

I thought the worst of today would be figuring out my position on a hard table with half my clothes off in a room of strangers, but that’s pretty darn minor. The hardest was trying not to lose it in front of an Empath who truly understood my pain. The hardest was reliving those frantic hours between December 10 and December 12, 2020. But I got my first tattoo.

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